0:02
Hello?
0:03
Hello?
0:03
Hello, da, da, surprise.
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I was just talking to my mother's story.
0:09
Oh, okay.
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Are you at home?
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No, just on the way to Getana.
0:13
Oh, okay, good.
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Uh, so she's not in the car?
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I'm in the car.
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Yeah, but she's not in the car.
0:19
No, no, she's not.
0:20
Okay, it's fine.
0:21
I just had a phone call.
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It was a daughter.
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Um, about.
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Anna, to the doctor about Anna from the Children's Hospital.
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And, uh, yeah, it was good.
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She was really good, really clear.
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I had a really good conversation with her.
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And, she's not worried at all about Anna.
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I talked about digestion, about her swallowing, compared with myself.
0:44
We talked about the chest pain.
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The main reason for the call was they've just been going through through reviewing it.
0:50
Um, and the nurse is due to be followed up, but they don't feel that they need to see her because the scan was normal.
0:58
The, um,
1:01
24 hour ECG was perfect.
1:04
Perfect.
1:06
She says a lot of times they get children saying my chest hurts, but what they mean is the heart is racing and it's normal because of the way they growing.
1:15
It's how to put it clearly like she did have episodes of tachycardia during the 24 hour ECG.
1:22
Well, grandma did a good job of logging everything.
1:25
And broadly speaking, it matches when she's been running or getting excited, her heart started beating faster.
1:32
It's normal.
1:33
It's not tachycardia, isn't it?
1:36
Yes.
1:36
I mean,
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It's be hard hitting too fast.
1:38
Um, and there was nothing, nothing out of normal expected range on that list, on the on the thing.
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But crucially, what to look at is that I was that she was asleep.
1:50
It was so, so steady, so steady that there was nothing.
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They don't see any, they've done three tests.
1:57
They've done ECG, 24 hour ECG, and
2:00
Heart scan, all the things that granddad's having now, and they can categorically 100% rule out anything with the heart.
2:08
Then I drill down onto SVT and discuss the background and the fact they was racing is a problem absolutely not this ecg 25 ecg categorically 100 rolls out SVT 100.
2:24
Okay, but we didn't exactly that.
2:28
Yeah, yeah, exactly.
2:30
Well, that
2:30
Was one of the things.
2:31
Well, you want that was good news because that was always a concern.
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They've got absolutely no concern going forward about SVT or her heart.
2:39
They don't want to follow it ever.
2:43
As far as they're concerned, these, she's had all the investigations for the heart that's possible to have.
2:49
And there's absolutely nothing out of the ordinary.
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The report shows periods of raised heartbeat, but it's normal and it's when she was active.
2:59
And crucial
3:00
When she was asleep, there was absolutely nothing to see whatsoever, an incredibly regular heart rhythm, she had a perfectly regular heart rhythm.
3:08
And about as far as the heart goes, they often get it, their children are not so eloquent, And she said, I said Anna has got very, very eloquent and you can have a conversation with her better than you can with most adults.
3:20
And the doctor said, yeah, these children are the worst for that because they describe everything in detail.
3:25
but it's a new sensation.
3:27
Till you're about five, you can't feel your heartbeat, or you know, you're not expecting it.
3:31
You become aware of these things, and your heart does race when you're doing something, and then it starts beating fast.
3:36
faster.
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And you're like, that's a weird sensation, because it works differently up to that age.
3:41
And also as they grow, the muscles grow faster than the heart.
3:44
So the heart does work a bit faster, because, you know, Suddenly, with the fetus, the heart couldn't pump the blood and it was going too fast.
3:53
They damaged itself.
3:54
And the children is not getting damaged.
3:56
It's just trying to catch up with the growth in the body.
3:59
As far as pain.
4:00
The other.
4:01
Yeah.
4:01
Yeah, she's the pain, it could, could the first thing to rule out is a cardio, cardiac problem.
4:07
That one we can definitely say it's fine.
4:09
Okay.
4:09
Secondly, the pain, if it's not cardiac, uh, it wouldn't be from food.
4:15
Even I agree, I never had pain.
4:17
I said, Yeah, you're right.
4:18
I never had pain swallowing when it first started as a problem.
4:22
And she said she's come across achalasia and children and she's actually experiencing that.
4:27
They always first symptom is that they can't swallow fluids.
4:32
If she's drinking and she's dribbling out of her mouth, or she's going to bed in fluid, is dribbling our mouths.
4:38
That's the sign.
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And usually.
4:39
She had like out of nothing just throwing up and that.
4:42
It remains unexplained, but it doesn't fit with the connection.
4:46
Like every morning now, like even now I try not to run to school because she just kind of feels like.
4:51
I think that's good advice for everybody in a way.
4:56
I know I'm not saying it's completely out of the question, but
5:00
This lady doctor, Italian, she was very nice and very clear and very good at listening.
5:06
She was, she's been her experience and she's dealt with children with akalasia.
5:11
Every single case, they've come to hospital or to the TV because of the drooling liquid at night and after eating and especially after drinking.
5:21
Nothing to do with either the carnival or solids.
5:24
It never works.
5:24
out in children.
5:25
Pain in the chest.
5:26
She never saw that in children with akkalasia.
5:29
I get pain.
5:29
It might not be akkalasia.
5:31
Sorry, Benny, because I need to go.
5:32
I'm here.
5:33
I've been for a while.
5:36
It might not be.
5:36
a collision.
5:37
Surely they should investigate any gastro issues.
5:40
Yeah, this it might not be.
5:42
There's a possibility.
5:44
But she's also been much better lately, in my opinion.
5:49
Because investigation means having a camera in her stomach.
5:52
It's horrible.
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If it can be avoided, it's worth it.
5:57
She's improving.
5:57
She said you can get gastritis and you can
6:00
Get, um, you can get inflammation in the oesophagus if you've been poorly.
6:04
And actually that fits because we were poorly, all of us, me and her were really poorly, ages, share the temperature.
6:10
It could even be just any, having a cold gives inflammation in the oesophagus.
6:14
And what about the medication?
6:17
Like,
6:18
You were saying, like I saw omeprazole, something like that for her, like to test.
6:22
She has reflux, but I don't honestly think that it's.
6:25
reflux given her chest pain.
6:27
I don't think she even had chest pain.
6:28
Well, you know, because she doesn't even say it anyway.
6:30
She say chest pain.
6:31
She says like, oh, it's like hot in there.
6:34
It's like, and sometimes I've said, is it like burning?
6:36
I mean, obviously, she can't explain it.
6:38
It's it's not like she's now out.
6:40
Because she's
6:41
Like.
6:41
Oh, it hurts.
6:42
It hurts very much now.
6:43
But you can see she's not in pain at all.
6:45
And I think she just means that there is something there, like, maybe pressing or.
6:50
Yes, yes.
6:51
You've touched upon exactly the point the doctor made.
6:54
It's probably that she's got a raised heart rate.
6:56
The heart is catching on with the muscles in the body.
6:59
The heart starts
7:00
Beating faster and she becomes aware of it, which she hadn't been when she was younger.
7:04
And she feels like, tudom, tudom, tudom, which we all get if we exercise.
7:08
And then she sees it as a worrying problem.
7:10
I did mention that it happens at bedtime.
7:12
And then the doctor brought something else up.
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She said, the most common place to get growth pain, a growing pain is the legs.
7:20
The second most common is the rib cage.
7:22
So it could even be that she has growing groin pains in there, or very likely a combination of all three.
7:28
Anyway, I know you want to go.
7:30
And the result was, they're not worried about the heart in the slightest.
7:35
The eating that she, we can, almost certainly rule out achalasia, but there's still a question mark over the eating, but the diagnostics are really horrible.
7:44
So if there's any, if there's improvement, we could probably put it down to like, just when you've got cold, that you get inflammation in your body that makes you feel rubbish, and it may have been even in the esophagus, and that's not uncommon in children at all.
7:57
And thirdly, it could, there could be growing pains, I'd say,
8:00
Because she's been having groin pains in her leg and her arm and I said, I mentioned they said, yeah, you can get them.
8:05
You get the legs and you get the chest and you get the arm and it goes in a cycle.
8:08
And she's been saying my arm hurts, my elbow hurts because she's growing and she's at an age where they have a bit of a.
8:13
spark.
8:14
Yeah.
8:15
So that's not. did they say, so she's being discharged?
8:18
No, she says I do want to follow up because I'm not sure where it is because it wasn't my case.
8:23
I said, well, I thought you know, my wife is very worried about these things and wants to get to the bottom of everything.
8:29
But personally, I don't think she should have a gastroscopy if it's not absolutely, you know, there's not a clear problem.
8:35
And she she said, okay, so what we're doing she's giving a one year nation initiative referral, whatever it's called.
8:42
So I don't know how it's coming by email or letter.
8:45
For the next 12 months, we can turn on, we can request an appointment.
8:48
The with the pediatrician.
8:49
So she's not discharged or she's discharged to us, not to anybody else.
8:54
And we make the decision.
8:55
We got 12 months.
8:56
If symptoms persist or get worse, we can go back.
9:00
Something I wouldn't let have a gastroscopy just because once she regurgitated some, uh, strawberries when she ran and it was very hot and so on, yeah?
9:09
There's, there's a lot of.
9:11
Yeah,
9:11
Yeah, yeah, yeah, okay.
9:12
All right.
9:13
So so I'm happy with them personally and I really asked her, can you please email the report of the 24 hour ECG because we want to see it, because I knew that you were worried about SVT and I was.
9:24
I wanted to know.
9:25
She even when I really talked to Anna, it tried to understand it when she says it hurts.
9:31
She describes it like, du dum, du dum.
9:32
She's feeling a hobby and suddenly all creaked into place, what the doctor said.
9:36
And she's basically on experience of diagnosing these things for years and years.
9:41
And so, and I said, but is it normal for it to be raised at any point?
9:44
And he said, Absolutely.
9:45
When you go up the stairs it raises, when you run it raises.
9:47
Children get excited, and run.
9:49
Or just seeing the favourite toy gets them excited and the heart starts beating faster.
9:53
And then they become aware of it and they get worried and anxious and it beats even faster.
9:57
And then you get this tudom tudom and they're not used to it.
10:00
To go when it should be.
10:01
I didn't.
10:02
So don't worry.
10:02
And I asked her email and she said, yes, I wasn't
10:04
Worried about that.
10:05
It was the I always I was very relaxed about the heart.
10:08
It was the gastro stuff that I'm concerned about.
10:11
It seems like I'm I'm convinced by it, but we've got a 12 month self-referral option.
10:17
Okay.
10:18
Ida.
10:18
Ida.
10:19
Ida, so.
10:19
Bye bye.