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2026-07-14 16:50:04
fbm:1784044204031:a9181705de 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Da they will come not sure on time though but I think after 4-5pm
 — Facebook Messenger
2026-07-14 16:46:09
fbm:1784043968685:45dc7b134b 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Did you invite them on Saturday?
 — Facebook Messenger
2026-07-14 16:23:20
fbm:1784042599985:b3e06bbf2f 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Its ok
 — Facebook Messenger
2026-07-14 16:21:40
fbm:1784042499991:59d628c0bb 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Sorry it’s because I’m driving
 — Facebook Messenger
2026-07-14 16:21:05
fbm:1784042464639:c078f710f1 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
I will pay for the Ocado pass
 — Facebook Messenger
2026-07-14 16:20:42
fbm:1784042442426:1cf30bb521 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Uf sorry I thought you said she’s sick
 — Facebook Messenger
2026-07-14 16:17:31
fbm:1784042251499:a9691a5a52 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
What's up?
 — Facebook Messenger
2026-07-14 16:07:15
msg:eb0c474e656655ac77d5271124da4b6a0f99c92be99bbf6c4732f9a027826dea 		447886647701@s.whatsapp.net
to mac_messages:behnam_mac:self
— 		—
—
 — Whatsapp
2026-07-14 16:07:15
msg:96f400c60cf81205d6680107d30245430ce0e03d4118df9ad6e49469e0706794 		Sarah Smith
to Behnam
— 		—
—
 1 image
Whatsapp
2026-07-14 16:06:32
fbm:1784041591910:7e72b35918 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Oh my god
 — Facebook Messenger
2026-07-14 16:05:21
fbm:1784041521201:5a38d2ca79 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Behni dont we have ocado free delivery? I have to pay to book a slot
 — Facebook Messenger
2026-07-14 16:05:01
fbm:1784041501007:828b7311d2 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Marcel.messaged she is ok, shes been fine at school gone to gymnastics
 — Facebook Messenger
2026-07-14 15:50:44
fbm:1784040644448:b67b34c93f 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
That is the least of the worries, it’s incredibly safe, just don’t think about it too much now please
 — Facebook Messenger
2026-07-14 15:50:04
fbm:1784040604035:de1c212a1f 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
:( i know but i dont even want her to go under general anaesthetic. She is so small we dont know how shell react.
 — Facebook Messenger
2026-07-14 15:50:02
fbm:1784040602028:0cb99f2cbf 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
But honestly, I wouldn’t care if I lived or died for her not to have it
 — Facebook Messenger
2026-07-14 15:49:29
fbm:1784040568682:3708d1f37e 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Like in me
 — Facebook Messenger
2026-07-14 15:49:26
fbm:1784040565655:4ec8dc0e05 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Treatment options and outcomes are much much better before the damage is done
 — Facebook Messenger
2026-07-14 15:48:30
fbm:1784040510103:aa02b93172 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Remain positive
 — Facebook Messenger
2026-07-14 15:48:25
fbm:1784040505052:0c45591f75 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
But step by step
 — Facebook Messenger
2026-07-14 15:48:21
fbm:1784040501009:b524bf96ad 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
We already with the Doctor, it’s an early point to know about it, it won’t take years to be diagnosed
 — Facebook Messenger
2026-07-14 15:47:59
fbm:1784040478780:6b2ff95fd9 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
There can be nothing good about it but, in the worst case, she has everything in her favour
 — Facebook Messenger
2026-07-14 15:47:18
fbm:1784040438381:5233871b44 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
I’m feeling very very down about it, but I don’t want to lose hope that it’s explain some other way
 — Facebook Messenger
2026-07-14 15:46:40
fbm:1784040400002:3470643298 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
But the pressure test cannot be, no way, because they put the wire in via your nose then you drink water from the mouth and swallow on command
 — Facebook Messenger
2026-07-14 15:46:06
fbm:1784040365643:3680545f54 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
And barium test doesnt have as many x rays as in grown ups
 — Facebook Messenger
2026-07-14 15:45:36
fbm:1784040336356:7fe22df399 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Yes i talked about tests too, apparently gastroscopy in children is done with general anestetic
 — Facebook Messenger
2026-07-14 15:45:28
fbm:1784040328283:b71b419973 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
I know I mean I could say that regardless
 — Facebook Messenger
2026-07-14 15:45:03
fbm:1784040303027:6d8c58de16 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Ill send you the whole chat but he thinks everything ive said fits it.
 — Facebook Messenger
2026-07-14 15:44:59
fbm:1784040298986:3843d3294f 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
A lot worse than endoscopy
 — Facebook Messenger
2026-07-14 15:44:46
fbm:1784040285842:7ea5a30278 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Screenshot text: 15:44 • Taking very tiny mouthfuls. • Eating very slowly and being the last to finish. • Preferring softer foods and not liking meat (except soft chicken). • Often wanting a drink with meals. • Saying food feels stuck. • Food coming back into her mouth and swallowing it again. • Two recent episodes of bringing food back up, including undigested food about an hour after eating. • A father with achalasia. That pattern is certainly consistent with an oesophageal swallowing problem, and achalasia is one of the conditions that would be considered. It still doesn't mean she has achalasia—there are other conditions that can produce similar symptoms—but I do think it's enough that her doctors should know all of these details together. + Reply to ChatGPT
 1 image
Facebook Messenger
2026-07-14 15:44:41
fbm:1784040280799:e266bcf1a6 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
The pressure test is absolutely terrible. I can’t describe how terrible.
 — Facebook Messenger
2026-07-14 15:44:29
fbm:1784040268681:0f2709a6da 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
The barium is not unpleasant, it’s even fun to do but it carries the risk that you’re having so many x-rays
 — Facebook Messenger
2026-07-14 15:43:45
fbm:1784040225252:93c82ffd80 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
The barium will reveal if the oesophagus sphincter is functional
 — Facebook Messenger
2026-07-14 15:43:35
fbm:1784040215149:a54ef64af7 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
That’s called the pressure test and that checks motility in the oesophagus
 — Facebook Messenger
2026-07-14 15:43:24
fbm:1784040204043:d8f39627ba 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
*barium
 — Facebook Messenger
2026-07-14 15:43:17
fbm:1784040196966:bd1ee643ba 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Bahram is one but to be honest, other important test is the one where they put the wire in your nose and check the strength of the muscle in your oesophagus
 — Facebook Messenger
2026-07-14 15:43:00
fbm:1784040179798:352d1932d3 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
This thing is at this point that is the tests are horrible
 — Facebook Messenger
2026-07-14 15:42:16
fbm:1784040136363:3c06dd4b7e 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
I even said that about the chest pain before
 — Facebook Messenger
2026-07-14 15:42:09
fbm:1784040129293:b779633f36 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Yes, they do
 — Facebook Messenger
2026-07-14 15:42:05
fbm:1784040125248:acdd8751c0 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Especially as its after running.
 — Facebook Messenger
2026-07-14 15:42:04
fbm:1784040124248:35e67dc6b2 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
We already did explain it when we went there and he did not all of it and he said we will study carefully but First, let’s check the heart
 — Facebook Messenger
2026-07-14 15:41:55
fbm:1784040115150:f2122ead46 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
But there is no explanation and I spoke to Chatgpt he thinks all the symptoms do fit achalasia
 — Facebook Messenger
2026-07-14 15:41:27
fbm:1784040086861:ff35180a1c 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
I don’t
 — Facebook Messenger
2026-07-14 15:41:23
fbm:1784040082828:ac98c9a995 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
Honestly I think they will rightly say one / two incidents is not enough to worry about
 — Facebook Messenger
2026-07-14 15:41:22
fbm:1784040081801:55bb2e3772 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
I have trars in my eyes all day, I dont want any of that for her.
 — Facebook Messenger
2026-07-14 15:40:49
fbm:1784040049497:32d24ffbcd 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
I’m very very sad
 — Facebook Messenger
2026-07-14 15:40:46
fbm:1784040046461:c78ae2b536 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
It’s in my mind all day
 — Facebook Messenger
2026-07-14 15:40:42
fbm:1784040042422:2ba4c7185f 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
No, sadly, there’s not much we can do right now except keep an eye on her and record patterns
 — Facebook Messenger
2026-07-14 15:40:29
fbm:1784040029286:709a532978 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
Ok
 — Facebook Messenger
2026-07-14 15:40:20
fbm:1784040020195:f9dc467b20 		Suzana Janachkova
to Behnam Rafraf
Suzana 		incoming
I just cant think of anything else
 — Facebook Messenger
2026-07-14 15:40:16
fbm:1784040016168:4095f84536 		Behnam Rafraf
to Suzana Janachkova
Behnam 		outgoing
I could ring the hospital and ask for the Secretary’s details, but we are there tomorrow anyway
 — Facebook Messenger
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