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2026-07-14 15:47:59
fbm:1784040478780:6b2ff95fd9
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
There can be nothing good about it but, in the worst case, she has everything in her favour
— Facebook Messenger
2026-07-14 15:47:18
fbm:1784040438381:5233871b44
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I’m feeling very very down about it, but I don’t want to lose hope that it’s explain some other way
— Facebook Messenger
2026-07-14 15:46:40
fbm:1784040400002:3470643298
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
But the pressure test cannot be, no way, because they put the wire in via your nose then you drink water from the mouth and swallow on command
— Facebook Messenger
2026-07-14 15:46:06
fbm:1784040365643:3680545f54
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
And barium test doesnt have as many x rays as in grown ups
— Facebook Messenger
2026-07-14 15:45:36
fbm:1784040336356:7fe22df399
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Yes i talked about tests too, apparently gastroscopy in children is done with general anestetic
— Facebook Messenger
2026-07-14 15:45:28
fbm:1784040328283:b71b419973
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I know I mean I could say that regardless
— Facebook Messenger
2026-07-14 15:45:03
fbm:1784040303027:6d8c58de16
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Ill send you the whole chat but he thinks everything ive said fits it.
— Facebook Messenger
2026-07-14 15:44:59
fbm:1784040298986:3843d3294f
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
A lot worse than endoscopy
— Facebook Messenger
2026-07-14 15:44:46
fbm:1784040285842:7ea5a30278
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Screenshot text: 15:44 • Taking very tiny mouthfuls. • Eating very slowly and being the last to finish. • Preferring softer foods and not liking meat (except soft chicken). • Often wanting a drink with meals. • Saying food feels stuck. • Food coming back into her mouth and swallowing it again. • Two recent episodes of bringing food back up, including undigested food about an hour after eating. • A father with achalasia. That pattern is certainly consistent with an oesophageal swallowing problem, and achalasia is one of the conditions that would be considered. It still doesn't mean she has achalasia—there are other conditions that can produce similar symptoms—but I do think it's enough that her doctors should know all of these details together. + Reply to ChatGPT
1 image
Facebook Messenger
2026-07-14 15:44:41
fbm:1784040280799:e266bcf1a6
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
The pressure test is absolutely terrible. I can’t describe how terrible.
— Facebook Messenger
2026-07-14 15:44:29
fbm:1784040268681:0f2709a6da
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
The barium is not unpleasant, it’s even fun to do but it carries the risk that you’re having so many x-rays
— Facebook Messenger
2026-07-14 15:43:45
fbm:1784040225252:93c82ffd80
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
The barium will reveal if the oesophagus sphincter is functional
— Facebook Messenger
2026-07-14 15:43:35
fbm:1784040215149:a54ef64af7
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
That’s called the pressure test and that checks motility in the oesophagus
— Facebook Messenger
2026-07-14 15:43:24
fbm:1784040204043:d8f39627ba
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
*barium
— Facebook Messenger
2026-07-14 15:43:17
fbm:1784040196966:bd1ee643ba
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Bahram is one but to be honest, other important test is the one where they put the wire in your nose and check the strength of the muscle in your oesophagus
— Facebook Messenger
2026-07-14 15:43:00
fbm:1784040179798:352d1932d3
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
This thing is at this point that is the tests are horrible
— Facebook Messenger
2026-07-14 15:42:16
fbm:1784040136363:3c06dd4b7e
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I even said that about the chest pain before
— Facebook Messenger
2026-07-14 15:42:09
fbm:1784040129293:b779633f36
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Yes, they do
— Facebook Messenger
2026-07-14 15:42:05
fbm:1784040125248:acdd8751c0
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Especially as its after running.
— Facebook Messenger
2026-07-14 15:42:04
fbm:1784040124248:35e67dc6b2
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
We already did explain it when we went there and he did not all of it and he said we will study carefully but First, let’s check the heart
— Facebook Messenger
2026-07-14 15:41:55
fbm:1784040115150:f2122ead46
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
But there is no explanation and I spoke to Chatgpt he thinks all the symptoms do fit achalasia
— Facebook Messenger
2026-07-14 15:41:27
fbm:1784040086861:ff35180a1c
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I don’t
— Facebook Messenger
2026-07-14 15:41:23
fbm:1784040082828:ac98c9a995
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Honestly I think they will rightly say one / two incidents is not enough to worry about
— Facebook Messenger
2026-07-14 15:41:22
fbm:1784040081801:55bb2e3772
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
I have trars in my eyes all day, I dont want any of that for her.
— Facebook Messenger
2026-07-14 15:40:49
fbm:1784040049497:32d24ffbcd
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I’m very very sad
— Facebook Messenger
2026-07-14 15:40:46
fbm:1784040046461:c78ae2b536
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
It’s in my mind all day
— Facebook Messenger
2026-07-14 15:40:42
fbm:1784040042422:2ba4c7185f
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
No, sadly, there’s not much we can do right now except keep an eye on her and record patterns
— Facebook Messenger
2026-07-14 15:40:29
fbm:1784040029286:709a532978
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Ok
— Facebook Messenger
2026-07-14 15:40:20
fbm:1784040020195:f9dc467b20
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
I just cant think of anything else
— Facebook Messenger
2026-07-14 15:40:16
fbm:1784040016168:4095f84536
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I could ring the hospital and ask for the Secretary’s details, but we are there tomorrow anyway
— Facebook Messenger
2026-07-14 15:40:10
fbm:1784040010091:092c25d597
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
True
— Facebook Messenger
2026-07-14 15:39:42
fbm:1784039981812:53642346ea
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
It will be for sure but it’s a lot closer to the right people than the GP
— Facebook Messenger
2026-07-14 15:39:09
fbm:1784039949487:b7b85a5d25
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Yeah I thought that as well, just maybe it's a different department we'll go to, but let's see
— Facebook Messenger
2026-07-14 15:39:03
fbm:1784039943437:096bb94486
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
It’s only 24 hours. Prefer that to going via GP
— Facebook Messenger
2026-07-14 15:38:39
fbm:1784039919195:979461394c
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Because the doctor we saw has left for 1 year sabbatical
— Facebook Messenger
2026-07-14 15:38:26
fbm:1784039906065:ac5cb6de76
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
You know what, we will be there tomorrow, we can ask about it and ask for the secretary’s phone number
— Facebook Messenger
2026-07-14 15:37:41
fbm:1784039860602:e921072e3f
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I’m not sure, will find out
— Facebook Messenger
2026-07-14 15:37:31
fbm:1784039850502:afeb854cad
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Ajde I can do that
— Facebook Messenger
2026-07-14 15:33:56
fbm:1784039636351:decdefc345
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Behni ive been talking to chat gpt, he says to contact pediatrician and tell them of these symptoms so can prioritise digestive investigation. Are we able to contact them directly or do we need to go through GP?
— Facebook Messenger
2026-07-14 15:33:46
fbm:1784039626260:10d8e3d6b4
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: Субтитры сделал DimaTorzok
1 voice
Facebook Messenger
2026-07-14 15:33:45
fbm:1784039625251:59a137f767
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
💕
— Facebook Messenger
2026-07-14 15:32:27
fbm:1784039547478:3be139b819
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
I’m so jealous haha
— Facebook Messenger
2026-07-14 14:57:45
fbm:1784037464640:374c26e470
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: Okay, I'm gonna start. Where do I drive?
1 voice
Facebook Messenger
2026-07-14 14:57:38
fbm:1784037457566:6c69cf2c99
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: That's fucking scary. I don't know.
1 voice
Facebook Messenger
2026-07-14 14:57:34
fbm:1784037453535:30c23128c2
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Voice note: Of course you win.
1 voice
Facebook Messenger
2026-07-14 14:57:22
fbm:1784037442424:3ff5fc684e
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: It's so weird. I don't know if I'm gonna get used to, you know.
1 voice
Facebook Messenger
2026-07-14 14:57:22
fbm:1784037442421:4e04e6beb9
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Yes
— Facebook Messenger
2026-07-14 14:57:08
fbm:1784037428276:5679897275
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: So I'm just pressing and that's it?
1 voice
Facebook Messenger
2026-07-14 14:57:07
fbm:1784037427278:74baf90827
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Yes it does it for you
— Facebook Messenger
2026-07-14 14:57:05
fbm:1784037425250:b7264d8d0f
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: But that thing to take a roof down.
1 voice
Facebook Messenger
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