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2026-07-16 14:38:05
fbm:1784209084813:a3992a4285
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Ok but also if its progressive like that is there anyrhing they can do to stop it getting worse?
— Facebook Messenger
2026-07-16 14:38:04
fbm:1784209083835:fa9f09b275
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Its the most clear. It was from that they said i've got achalasia
— Facebook Messenger
2026-07-16 14:37:55
fbm:1784209074739:320137a4ea
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
The manometry shows how the muscles in the oesophagus are performing at each point
— Facebook Messenger
2026-07-16 14:37:31
fbm:1784209050500:1126ae045c
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
So at an early stage, barium would be less conclusive
— Facebook Messenger
2026-07-16 14:37:19
fbm:1784209039393:8022ab9fea
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Lower oespoheagal sphincter
— Facebook Messenger
2026-07-16 14:37:09
fbm:1784209029286:af4813ca05
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Yes barium tracks the flow of the chalky liquid into the stomach. But the failure in me started at the top and worked downwards until the LES was clamped shut
— Facebook Messenger
2026-07-16 14:37:01
fbm:1784209021190:f70baf8817
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Like she doesnt like meat only very soft chicken. She eats super slowly most of the time. Takes tiny bites as well. These were all things chat gpt asked me, I didn't even realise them
— Facebook Messenger
2026-07-16 14:36:44
fbm:1784209004042:d039c62747
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I know I can imagine that
— Facebook Messenger
2026-07-16 14:36:12
fbm:1784208971691:770115acec
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Chat gpt says kids are amazing at adjusting and seeing it as a normal thing
— Facebook Messenger
2026-07-16 14:36:12
fbm:1784208971695:cbe67a9f56
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Photo attachment
1 image
Facebook Messenger
2026-07-16 14:36:12
fbm:1784208971694:1ada1ef2fe
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Screenshot text: TDI MAX MIN
1 image
Facebook Messenger
2026-07-16 14:36:11
fbm:1784208970680:55389b7085
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Photo attachment
1 image
Facebook Messenger
2026-07-16 14:36:10
fbm:1784208969679:27b3c496f2
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Photo attachment
1 image
Facebook Messenger
2026-07-16 14:35:55
fbm:1784208954518:67dbb35989
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Im sorry :( I dont want that either and im sorry you had to go through it. Well let's see maybe she wont need that, could barium.be enough? They might do them differently in kids. I dont know about the episodes. In school was a one off, bit she has complained in mornings several times that it hurts, so it might be just how it starts. First with a bit of liquid coming back before progressing but we wont know for sure just have to wait and see how it develops. The sick is still there from the strawberries, they havent even cleaned it. It was twice as well. She got so scared of it cause it was so sudden first it was just saliva and by the time I said its ok its just saliva it all came out. I think she might have even learned to.manage it and have a feel for it. Cause this morning she was coughing and I stopped to check and she said its ok im not going to be sick its just stuck down there. If we were running i think it might have come out again.
— Facebook Messenger
2026-07-16 14:27:54
fbm:1784208473732:b71b2e17ed
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I know :( I'm down about it too. I'm pretty sure that sick the other day is from the heat or something theyve eaten. I dont think the tests are necessarily risky (barium is a tiny bit) but what im particularly mindful of is that the manometry is absolutely awful. You cannot imagine. I dont want her to be traumatised about doctors or hospital
— Facebook Messenger
2026-07-16 14:26:25
fbm:1784208384820:8f7738ee63
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
It just makes me feel so down last few days. Its so hard to do work, this waiting is just horrible. And expecting her to be sick every time we walk to school, checking on her. She said the other day I dont want sleep on my own cause im.scared not to suddenly get poorly like she did then other day jsut being sick unexpectedly
— Facebook Messenger
2026-07-16 14:24:49
fbm:1784208288852:abd277aab4
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Ok lovely, i know we cant do much else, doing our best. And I know what you mean about not pushin, the risks etc.. I think you've made our position super clear in that email. Might need to research on diagnosis in children. You said it might not be clear cause she is young, I didnt think of that. Certainly dont want to do any harm with premature treatments. I do want it diagnosed though if it is possible.
— Facebook Messenger
2026-07-16 14:02:27
fbm:1784206947472:6800ed687d
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
We are doing our bit and we must be led by the professionals. I feel very confident that we are in the best hands possible, so far
— Facebook Messenger
2026-07-16 14:02:00
fbm:1784206920204:bf22ca4ac4
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
If it is achalasia, and it remains a very big if, its very early stage. too early to treat i think other than dilation, and she is still growing... and, at such an early stage, the results may not be clear
— Facebook Messenger
2026-07-16 14:01:25
fbm:1784206884843:0bb861334d
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I know. Well we wont accept that. But its about balancing it against the experience of the tests, considering the risk at each point etc
— Facebook Messenger
2026-07-16 14:00:55
fbm:1784206854515:bf250da2c7
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
I dont know really, thats what they dod with you and look what happened took months to get to bottom of ot
— Facebook Messenger
2026-07-16 14:00:07
fbm:1784206807077:5d14205d82
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Well if its achalasia, no, if it isnt, then it may. May be just reflux... she's been diagnosed previously. I think lanseprazole is a reasonable starting test
— Facebook Messenger
2026-07-16 13:59:25
fbm:1784206764637:e990e57503
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Yes gone
— Facebook Messenger
2026-07-16 13:59:17
fbm:1784206756554:6475b4e209
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Got the code but might need get another one
— Facebook Messenger
2026-07-16 13:59:13
fbm:1784206752502:52d2df9069
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Think so too, i am in a meeting but yes happy to wait, I hope it improves but is there a chance of that?
— Facebook Messenger
2026-07-16 13:59:07
fbm:1784206747465:cc3cc30ffc
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Screenshot text: Behnam Rafraf And I wanna check the service history on the sc... support@warranty... Yesterday to me logo-top Your authorisation code is: 4 4 6 3 Or click the button below: View Your Warranty This code will be valid until 2026-07-15T17:02:20.218237Z. After that you can access your quote by clicking here. Thank you Warrantywise Limited is a company registered in England and Wales No. 07963594 The Rocket Centre, 3 Trident Way, Blackburn, Lancashire, BB1 3NU Part of Wise Group Holdings Limited, Company No. 10613336. Didn't request this? Contact us. Reply Forward
1 image
Facebook Messenger
2026-07-16 13:58:54
fbm:1784206734346:cac0fe13b8
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Is the tyre warning gone now?
— Facebook Messenger
2026-07-16 13:58:48
fbm:1784206728288:57051ff170
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
And I wanna check the service history on the screen
— Facebook Messenger
2026-07-16 13:58:39
fbm:1784206719191:746fbb317b
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
We will x
— Facebook Messenger
2026-07-16 13:58:32
fbm:1784206712124:c7de8d4557
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I dont want to make "too" much of a fuss nor rush it. Because if its something that improves a bit, its amazing not to have to go through the tests
— Facebook Messenger
2026-07-16 13:58:10
fbm:1784206689887:658542ec27
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Oky and we need to set up the car paytment
— Facebook Messenger
2026-07-16 13:58:09
fbm:1784206688884:34b5fbcf2d
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
If you have meetings. But i think the email is enough
— Facebook Messenger
2026-07-16 13:58:01
fbm:1784206680802:0a39acd613
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I will do it in about 20 min
— Facebook Messenger
2026-07-16 13:57:54
fbm:1784206673729:d27b36daba
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Yess I think will be ok
— Facebook Messenger
2026-07-16 13:57:48
fbm:1784206667665:76e44c056c
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
I'm updating capital one because not letting to log in at all
— Facebook Messenger
2026-07-16 13:56:50
fbm:1784206610094:e26a4b82df
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Right,?
— Facebook Messenger
2026-07-16 13:56:45
fbm:1784206605047:47b5c504a3
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Well if nobody pays it will pay when I get money tonight I don't thinks ots the problem if same day anyways..
— Facebook Messenger
2026-07-16 13:56:34
fbm:1784206593933:47e38f0832
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Yesss I did
— Facebook Messenger
2026-07-16 13:56:26
fbm:1784206585843:10d1ffb926
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Did you did reminders?
— Facebook Messenger
2026-07-16 13:56:25
fbm:1784206584839:10cb682752
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Da I dont know, i would call switchboard and ask for general paediatric consultants secretaries office
— Facebook Messenger
2026-07-16 13:56:16
fbm:1784206575724:d98d5f587b
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
And says call the relevant line
— Facebook Messenger
2026-07-16 13:56:03
fbm:1784206562623:37622f3826
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Also I did some research. If they want to check out digestive issues, the childrens hospital has a dedicated gastroenterology dept. So most likely they would refer to them
— Facebook Messenger
2026-07-16 13:55:59
fbm:1784206558562:4d2665a9d8
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Thats the switchboard they provided
— Facebook Messenger
2026-07-16 13:55:47
fbm:1784206547448:ce879c4e0c
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Not sure which number to call though
— Facebook Messenger
2026-07-16 13:55:37
fbm:1784206537348:568f69d7ed
Suzana Janachkova
to Behnam Rafraf
Suzana
incoming
Ok i have a meeting now at 2
— Facebook Messenger
2026-07-16 13:55:18
fbm:1784206518180:be6824842c
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
Just to say there are some new symptoms and we have emailed
— Facebook Messenger
2026-07-16 13:55:10
fbm:1784206510105:c3c441df29
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
I can try if you prefer
— Facebook Messenger
2026-07-16 13:55:06
fbm:1784206506068:aa41cd805f
Behnam Rafraf
to Suzana Janachkova
Behnam
outgoing
So if you want you can ring to talk to the secretaries (its obviously an office they share)
— Facebook Messenger
2026-07-16 13:55:06
fbm:1784206506054:4c812899c0
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
At scarlotes
— Facebook Messenger
2026-07-16 13:55:00
fbm:1784206499992:4ef48fddb0
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Its finishing ;(
— Facebook Messenger
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