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2026-07-17 18:54:01
fbm:1784310841417:7dadab0dc8
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
I’m trying to take them all the way
— Facebook Messenger
2026-07-17 18:53:54
fbm:1784310834346:7997f7ec35
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
It made the glasses move back
— Facebook Messenger
2026-07-17 18:53:46
fbm:1784310826252:df303d93ec
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
Yes on purpose
— Facebook Messenger
2026-07-17 18:53:24
fbm:1784310804048:cee4ea4bbe
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: Are you okay? What the fuck you almost touched the curb when driving and now
1 voice
Facebook Messenger
2026-07-17 18:34:32
fbm:1784309671714:df8e36939c
Behnam Rafraf
to Deimantė Kavaliauskaitė
Behnam
outgoing
https://maps.app.goo.gl/WBhP4UeZvec7Q6d99?g_st=ifm
— Facebook Messenger
2026-07-17 15:45:31
fbm:1784299531310:34ac0a2105
Deimantė Kavaliauskaitė
to Behnam Rafraf
Deimante
incoming
Voice note: Shit, I forgot to put money for council. Can we just pay somehow at some point? Somehow that 50 and 50 and something was there.
1 voice
Facebook Messenger
2026-07-17 15:38:21
fbm:1784299100999:db7cb61562
Janice Rafraf
to Behnam Rafraf
Janice
incoming
And I got two beautiful boys
— Facebook Messenger
2026-07-17 15:37:23
fbm:1784299043429:e1c39453af
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Yes, not just a bit, the fact that you married someone from the Middle East meant that you had virtually zero risk of having a baby with cystic fibrosis
— Facebook Messenger
2026-07-17 15:36:28
fbm:1784298987868:b529bd25e1
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
And if you have a grandfather who was Italian or something, of which that’s already a big chunk of the population
— Facebook Messenger
2026-07-17 15:36:18
fbm:1784298977770:2abbaf6223
Janice Rafraf
to Behnam Rafraf
Janice
incoming
And I suppose you Persian genes came to the rescue a bit
— Facebook Messenger
2026-07-17 15:36:15
fbm:1784298974742:4a1c4ff148
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
So in the UK, nobody is completely of North European Heritage
— Facebook Messenger
2026-07-17 15:35:58
fbm:1784298957575:551381b70d
Janice Rafraf
to Behnam Rafraf
Janice
incoming
Well that’s good news for my grandchildren
— Facebook Messenger
2026-07-17 15:35:52
fbm:1784298951510:d0112590be
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
And every time someone marries someone from somewhere else the risk is diluted by half again
— Facebook Messenger
2026-07-17 15:35:36
fbm:1784298936366:95e09480b7
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
If you’re marry someone not of bot north European heritage to risk is virtually zero
— Facebook Messenger
2026-07-17 15:35:27
fbm:1784298927273:1d9d273021
Janice Rafraf
to Behnam Rafraf
Janice
incoming
Ok so not that common then
— Facebook Messenger
2026-07-17 15:35:07
fbm:1784298907069:8f93bd2f03
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
So two people having a baby, if both parents have pure North European heritage, it’s one in 2500
— Facebook Messenger
2026-07-17 15:34:36
fbm:1784298875750:04b714d4db
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
So that’s a 25% chance
— Facebook Messenger
2026-07-17 15:34:17
fbm:1784298856563:5ef8368c3e
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
And then 50% chance of each passing it on, the baby needs to get the Gene from both parents to mean they actually have to cystic fibrosis
— Facebook Messenger
2026-07-17 15:33:40
fbm:1784298820204:61a1a019db
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Well 1/25 x 1/25, that’s the likelihood of a couple both of North European Heritage becoming a couple, which is one in 625
— Facebook Messenger
2026-07-17 15:29:08
fbm:1784298548481:fd736ca99c
Janice Rafraf
to Behnam Rafraf
Janice
incoming
Ah … but Bijan’s heritage profile has changed now. As they get more info in database it changes
— Facebook Messenger
2026-07-17 15:28:25
fbm:1784298505057:1abce0e8cb
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
And we think there’s a strong chance that nanna was actually Danish
— Facebook Messenger
2026-07-17 15:28:19
fbm:1784298498984:25447932da
Janice Rafraf
to Behnam Rafraf
Janice
incoming
Wow it’s a wonder there aren’t more cases of CF then
— Facebook Messenger
2026-07-17 15:27:57
fbm:1784298476759:d989e62134
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
No, he’s fine
— Facebook Messenger
2026-07-17 15:27:49
fbm:1784298468679:4331ef5892
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
1 in 25 people of north European heritage are carriers
— Facebook Messenger
2026-07-17 15:27:46
fbm:1784298465651:c2a7d9ac51
Janice Rafraf
to Behnam Rafraf
Janice
incoming
But he doesn’t have the blockage you have
— Facebook Messenger
2026-07-17 15:27:17
fbm:1784298437378:f5d9024649
Janice Rafraf
to Behnam Rafraf
Janice
incoming
I remember asking a doctor friend once if nana would have had CF because of all her problems with breathing and phlegm But was told as carrier wouldn’t impact health that way.
— Facebook Messenger
2026-07-17 15:25:39
fbm:1784298339395:8fdaa362e8
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Don’t be ridiculous!!!!
— Facebook Messenger
2026-07-17 15:25:34
fbm:1784298334346:4d2782eb8b
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
But amany is not
— Facebook Messenger
2026-07-17 15:25:28
fbm:1784298328288:e588530635
Janice Rafraf
to Behnam Rafraf
Janice
incoming
I’m so sorry
— Facebook Messenger
2026-07-17 15:25:27
fbm:1784298327269:dc516649d9
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
And Bijan is
— Facebook Messenger
2026-07-17 15:25:19
fbm:1784298319194:732b544fe5
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
So you are almost certainly a carrier
— Facebook Messenger
2026-07-17 15:24:38
fbm:1784298277778:f1e4f9b07a
Janice Rafraf
to Behnam Rafraf
Janice
incoming
And again I only found out at a much later date.
— Facebook Messenger
2026-07-17 15:24:18
fbm:1784298257570:3255499347
Janice Rafraf
to Behnam Rafraf
Janice
incoming
I was getting annoyed at myself couldn’t remember cystic fibrosis
— Facebook Messenger
2026-07-17 15:23:38
fbm:1784298218182:5d78bdf3fa
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Of CF
— Facebook Messenger
2026-07-17 15:23:35
fbm:1784298215149:5328916fa2
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Not technically defective, just a carrier
— Facebook Messenger
2026-07-17 15:23:21
fbm:1784298201016:c8dbf4a9e6
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Yes
— Facebook Messenger
2026-07-17 15:23:16
fbm:1784298195949:5b51ebf38b
Janice Rafraf
to Behnam Rafraf
Janice
incoming
Ok sensible option at the time. But that’s where the defective gene came in
— Facebook Messenger
2026-07-17 15:23:14
fbm:1784298193930:516464dbf2
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
It wasn’t even my bladder that was under investigation, but he said I’ll have a little look while we’re in there. There’s no harm in checking.
— Facebook Messenger
2026-07-17 15:22:49
fbm:1784298168686:fd420de5ab
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
But after that procedure, I felt like I needed a wee for about a week, because they just inflate the bladder with air
— Facebook Messenger
2026-07-17 15:22:10
fbm:1784298130307:605dc40e53
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
It turns out it’s just totally absent
— Facebook Messenger
2026-07-17 15:22:04
fbm:1784298124247:f39d351044
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
So it was to check if there’s any blockage or something in the pipework
— Facebook Messenger
2026-07-17 15:21:57
fbm:1784298117172:e4e2c2baf2
Janice Rafraf
to Behnam Rafraf
Janice
incoming
You were also meant to rest after your stomach surgery but went back to work too soon
— Facebook Messenger
2026-07-17 15:21:50
fbm:1784298110108:ff9c8f3530
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
The vas deferens
— Facebook Messenger
2026-07-17 15:21:39
fbm:1784298098984:3b40bad7b5
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
That was because I wanted to get to the bottom of it, why there was a blockage
— Facebook Messenger
2026-07-17 15:21:13
fbm:1784298072725:d5c4049181
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
The needle sperm extraction
— Facebook Messenger
2026-07-17 15:21:06
fbm:1784298065658:183e2965a0
Janice Rafraf
to Behnam Rafraf
Janice
incoming
Omg … youve had too many examinations and procedures
— Facebook Messenger
2026-07-17 15:20:59
fbm:1784298058587:af25d2eff6
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
And our procedure, technically I was meant to rest for several days, but it was just a bit sore
— Facebook Messenger
2026-07-17 15:20:43
fbm:1784298043430:eb4e9ebd45
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Yes, but looking back at miscarriage was basically nothing
— Facebook Messenger
2026-07-17 15:20:23
fbm:1784298023231:0e91a51741
Janice Rafraf
to Behnam Rafraf
Janice
incoming
We really need to share more about what’s going on!! I had no idea and wouldn’t have expected you to come out And Suzana had just had a miscarriage the other time we all went to see them. 😢 I think it’s best I go on my own
— Facebook Messenger
2026-07-17 15:20:20
fbm:1784298020207:4cf64e842e
Behnam Rafraf
to Janice Rafraf
Behnam
outgoing
Oh and I also had a camera into the bladder via the front. That was particularly unpleasant
— Facebook Messenger
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